Nick Sireau

Cambridge, United Kingdom

Chairman and CEO of the AKU Society

I'm the father of two young boys with AKU (Black Bone Disease). We found out our first son had AKU shortly after birth, when we saw his nappies were going black. The first diagnosis was that my wife was eating too much red cabbage, which was somehow affecting the baby... Thankfully, we eventually got the correct diagnosis, although we were shocked to find out about Black Bone Disease. Since then, we've worked tirelessly to find a cure for this terrible disease. Please help us by donating!

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