What Every Parent Should Know to Keep Babies Safe: a Train-the-Trainer Program

Keep Kids Safe & Healthy: support an initiative to empower family members affected by Shaken Baby Syndrome to deliver prevention education across their state.
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Cindy Franciosa
Education
Saugus, Massachusetts
United States
6 Team Members

If you are arriving at our campaign after it has ended, please know we still need your help! Checks can be mailed to StopSBS, Inc./ 15 Walnut St./ Saugus, MA 01906. Please contact stopsbs1@yahoo.com with questions. Thank You!

Stop Shaken Baby Syndrome, Inc. is launching a country-wide Train-the-Trainer program, so that family members personally affected by Shaken Baby Syndrome can prevent SBS in their communities through educational workshops.  Your support will make this possible. 

Shaken Baby Syndrome most often occurs unintentionally in a moment of frustration when a parent or caregiver cannot console a baby who won’t stop crying.  When a baby or small child is shaken for as little as 3 seconds, he or she can suffer life-long brain injury, debilitating physical and mental disability, or even death.

StopSBS, Inc. Co-Founder and Director Shannon Byron has been committed to preventing SBS since her daughter Chelsea was shaken by her father when she was 3 months old.  Shannon's experience living with the consequences of SBS enabled her to create a practical, moving, and unforgettable workshop curriculum that helps parents and caregivers understand and prevent this devastating form of child abuse.  After educating communities throughout New England for the last 7 years, this small nonprofit founded by two mothers is now ready to expand across the country – and we need your help!

     

Our Train-the-Trainers program will:

  • Train educators in 12 or more states - who will later go on to train more educators - exponentially growing our educational reach with a domino effect across the country. Ultimately tens of thousands, and eventually hundreds of thousands, of individuals will be helped with preventative education.
  • Uniquely equip family members of SBS survivors with the tools to turn their personal tragedy into newfound purpose: giving life-saving educational workshops throughout their community and state.  This will help affected families heal and move forward, ensuring that their child’s injury was not in vain.
  • Equip trainers with everything they need to teach prevention workshops and create an outreach plan to strategically impact parents, parents-at-risk, and caregivers.
  • Increase the exchange of SBS information and support through a network of affected families.
  • Help families of survivors financially.
  • Bring HOPE that together we can make change.

By supporting this initiative, you will prevent new life-long injuries from happening to countless babies and small children across the country.  The more we raise, the more we train!

Reasons to donate and share:

  • This is a monumental moment for our organization: up until now we’ve had virtually no organizational funding and have worked entirely as unpaid volunteers.  This is our opportunity to expand our reach and impact drastically.  SBS is 100% preventable with education.
  • Please donate generously (it’s tax deductible!).  With crowdfunding campaigns on Indiegogo, we keep a higher percentage of the donations if we reach or exceed our goal.
  • April is Child Abuse Prevention Awareness Month and we aim to educate thousands of people about SBS through this video, so please share widely and often through your networks!
  • Check out the perks in the right-hand column to see what you’ll receive in return for your donation.  You'll find pictures of the perks below.

Where your money will go:

  • SBS Training Kits including Simulator Doll
  • Pre-printed materials, including brochures and flyers
  • Marketing materials for launching an Awareness Campaign
  • A training DVD tailored to suit the trainer’s individual experiences and story
  • Costs associated with travel and organizational outreach for the Train-the-Trainer program

Shannon Byron speaking at the annual SBS Stroll to Prevent Shaken Baby Syndrome.

About Shaken Baby Syndrome:

Each year in the United States alone an estimated 1,400 – 1,600 babies are diagnosed with Shaken Baby Syndrome.  SBS is the leading cause of death in abusive head trauma cases in children.  Because many children have been misdiagnosed, haven’t sought treatment, or, in cases of death, were not given an autopsy, it is widely believed that the actual number of SBS victims is almost triple that of the diagnosed cases.

Shaken Baby Syndrome is a form of child abuse with severe consequences. Approximately 1/3 of the diagnosed victims will suffer mild to moderate lifelong disabilities, 1/3 will suffer moderate to severe lifelong disabilities, 1/3 of these children will die, while only about 7% of survivors will develop seemingly without issue.  However, new research suggests there may be a connection between children who have been shaken and later diagnosed with ADD, oppositional defiance disorder, Asperger’s, and autism.  Visit http://stopsbs.org/facts/ for more information.

About our Organization:

Shannon Byron’s daughter Chelsea was shaken on February 14th, 2001, resulting in cerebral palsy, cortical visual impairment, epilepsy, and reflux. Devastated that her child endured horrific injuries at the hands of her father, Shannon soon came to find that Shaken Baby Syndrome was actually quite common.  It was also 100% preventable.  She feverishly scoured the internet for any resources to help her traverse endless doctors' consultations, therapy appointments, and corrective operations for her daughter.  She soon came across Cindy Franciosa, a children's advocate for preventing Shaken Baby Syndrome, who was spearheading an awareness campaign in her community.  In 2007, these two mothers joined to form Stop Shaken Syndrome, Inc, a 501c3 registered nonprofit committed to the eradication of Shaken Baby Syndrome through preventative education.  As it became clear that something so pervasive in their communities was not being addressed head-on, they began dedicating their time to presentations, lectures, workshops and training, which has continued for the past 7 years.  To see media coverage of StopSBS, Inc. visit http://stopsbs.org/media/.

StopSBS, Inc. is unique among SBS-focused nonprofits in that our stance is one of love and change.  While we understand that every instance of Shaken Baby Syndrome is a preventable tragedy, we don’t advocate for longer sentences or for “otherizing” abusers.  While some cases of SBS are caused maliciously, the overwhelming majority are caused unknowingly or unintentionally by a parent or caregiver who becomes momentarily frustrated with a child and shakes him or her vigorously for a few life-changing moments.  Our organization understands that caring for a baby or young child can indeed be difficult and frustrating, and equips new and at-risk parents and caregivers with practical techniques for dealing with stress safely and never taking frustrations out on a child.

Thank you so much from our family to yours!

Perks:

          

    

   

 

    

 

 

Find This Campaign On
$4,269USD
raised by 83 people in 1 month
12% funded
No time left
Verified Nonprofit
$35,000 USD goal
Flexible Funding This campaign has ended and will receive all funds raised.
Campaign Closed
This campaign ended on May 8, 2014
Select a Perk
  • $10USD
    Thank You email

    A special appreciation email from us to you, and the satisfaction of knowing you helped spread the word to keep babies safe!

    8 claimed
  • $20USD
    Name Pledge

    A pledge in the name of a special baby, child, parent or caregiver of your choosing. An e-certificate will be provided honoring this special contribution. What a wonderful way to commemorate a new baby or a special someone!

    9 claimed
  • $30USD
    New Baby Greeting Card

    A greeting card to celebrate the birth of a new baby while also reminding new parents that they can count on you for support when needed. (Preview card below.)

    2 claimed
    Estimated delivery: May 2014
  • $50USD
    Bumper Sticker

    An awareness bumper sticker with the Stop Shaken Baby Syndrome logo and "I donated to spread the word - Never Shake A Baby" imprinted. Why not spread the word while you're running errands! Give those behind you something to read!

    7 claimed
    Estimated delivery: May 2014
  • $75USD
    Men's T-shirt

    Men's T-shirt. "Real Men Keep Their Cool" on the Back, with the StopSBS logo in small. Stylish while making a statement at the same time. Win! (Once you've ordered, please send an email to stopsbs1@yahoo.com to let us know your T-shirt size.)

    2 claimed
    Estimated delivery: May 2014
  • $100USD
    Purple SBS Logo Baby Skullcap

    Baby Hat - Great for shower gifts! This is a fantastic way to bring up SBS to new moms and dads. Fits newborn to 3 months.

    1 claimed
    Estimated delivery: May 2014
  • $125USD
    Book for Parents

    "Shut Up About Your Perfect Kid: A Survival Guide for Ordinary Parents of Special Children" by Gina Gallagher. "Sisters Gina and Patty dare to speak up about the frustrations, sadness, and stigmas they face as parents of children with disabilities (one with Asperger’s syndrome, the other with bipolar disorder). This refreshingly frank book will alternately make you want to tear your hair out and laugh your head off, and should be required reading for parents of disabled children."

    0 out of 70 claimed
    Estimated delivery: May 2014
  • $125USD
    Children's Book

    "It's Okay to Be Different", by Todd Parr. For 3 -6 year olds. "With his signature artistic style, Parr shows readers over and over that just about anything goes. From the sensitive to the downright silly, kids of every shape, size, color, family makeup, and background will feel included in this gentle, witty book. In this simple, playful celebration of diversity, Parr doesn't ...hammer readers over the head with his message." - abridged Amazon review.

    0 out of 135 claimed
    Estimated delivery: May 2014
  • $150USD
    Men's StopSBS Support Tie

    Stylish man's tie with our logo imprinted in a soft blue color.

    0 claimed
    Estimated delivery: May 2014
  • $500USD
    Bronze Status & Bonus Perks

    A personal thank you from the founders of StopSBS, Inc., plus two additional perks of your choosing above. Please indicate with an email to stopsbs1@yahoo.com which perks you would like.

    0 claimed
    Estimated delivery: May 2014
  • $1,000USD
    Silver Status & Bonus Perks

    $1,000 - A personal thank you from the Founders plus three additional perks mentioned above. Please indicate with an email to stopsbs1@yahoo.com which perks you would like.

    0 claimed
    Estimated delivery: May 2014
  • $5,000USD
    Gold! Dinner & Bonus Perks

    $5,000 - Dinner with the Byron Family plus three additional perks mentioned above. Please indicate with an email to stopsbs1@yahoo.com which perks you would like.

    0 claimed
    Estimated delivery: May 2014
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