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Secret blood draws, controversy, no diagnosis, no cure, little funding yet 20 million people suffer with Myalgic Encephalomyelitis. WHAT ABOUT ME? investigates.
Susan Douglas
United Kingdom
1 Team Member

UPDATE: Our Indiegogo campaign as closed but if you are still looking to donate, please contact us on office@digitaldocumentaries.co.uk or call 44 (0) 203 642 7877 and we will provide you with the details as to how best to do so. 

INDIEGOGO LATEST: Check out our Updates page to see what the TRIPLE 5 WAVE OF SUPPORT is all about!


WHAT ABOUT ME? is a 90 minute feature documentary that takes the audience on a journey to investigate the debilitating conditions of ME and CFS. There is a battle to find the cure and we have captured the revelations and research in our documentary to
produce a story of intrigue, heartbreak and hope.

Commonly referred to as a mystery illness, it utterly debilitates lives of previously
healthy, active, vibrant individuals, leaves them bedbound, racked with pain
and suffering from devastating memory loss and confusion. Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) has left medical professionals and leading scientists perplexed as they have yet to find a known cause and cure.


How extraordinary life can be when just one event can trigger off a quest that will
last for years? As a documentary filmmaker I was intrigued to hear of
illnesses called M.E Myalgic Encephomyleitis and C.F.S. Chronic Fatigue
Syndrome when I sat next to a woman whose son was very ill with this illness. She
told me there was no real acceptance in Britain of his condition being biomedical
and I then discovered that this theory permeated throughout the world. This
piqued my curiosity further, and so began to gather the facts on ME. It
appeared that 20 million people were suffering worldwide, and yet there was
little government funding into research on it. Some sufferers were even being
ignored and treated as degenerates. How could that be? I was determined to find
out, so started WHAT ABOUT ME?

I have raised funds for children’s charities in Africa and Asia and now it is time to raise funds for a film that will gain recognition of the 20 million ME and CFS sufferers’ right to be heard worldwide. 


Picking up this film where we left it will highlight the controversy and conflict that surrounds this illness. WHAT ABOUT ME? will follow the aftermath of the XMRV announcement as it unleashed a surge of inquiry and scrutiny previously never levelled at ME.


The retrovirus link was eventually discredited in 2011, and whilst some argue it deterred scientists from working in the field others believe it opened doors to new research. Amidst the battle between research labs and Governmental bodies, is a lost ME community waiting for answers. There needs to be awareness brought to the Governments of the world, many of who continue to ignore the needs of sufferers in their country. We have heard this in conversations with ME patients from Australia, Mexico, Germany, Canada, Holland, Spain, Sweden, Britain and America. There is no doubt that this prevails across the globe. The aim is to release this documentary on a worldwide basis distributed via online platforms, theatrical screenings, TV channel commissions and on DVD.

Our collection of footage captures key elements of this story from the past four years. It includes interviews at the time of the XMRV discovery with British and US patients and ME experts in the UK and Sweden such as Dr John Gow at Glasgow University, Dr Charles Shepherd, Medical Advisor to the ME Association and Dr Jonas Blomberg, Uppsala University to name a few. We now also hold exclusive footage from recent events featuring a selection of revered scientists in the USA such as Professor Jose Montoya from Stanford School of Medicine, Dr Derek Enlander at Mount Sinai Clinic and Dr Lucinda Bateman from the Fatigue Consultation Clinic, Salt Lake City.

During this time, we have learnt how case definitions and treatments continue to vary and remain ambiguous but what certainly exists is the passion for the pursuit of a cure. The amazingly resourceful online ME community, many who have been left homebound by the illness, are committed advocates for ME and CFS that strive to be heard.

You most probably know of someone in your family or friendship group who is suffering from ME or CFS but have never identified how you can help until now. Help us complete this film that will tackle the stigma attached to ME and create enough of a noise so that Governments can’t avoid to the obstacles and turmoil the ME community faces on a daily basis.


Your dollars of support, will deliver perks ranging from a social media acknowledgement package to first edition DVDs and even an exclusive opportunity to feature in the closing titles of the film! We are also offering two lucky supporters who
can dig a little deeper a unique chance of joining us as Associate Producers
and one exceptional donation will gain Executive Producer credit!




We are keen to progress with filming and pursue the answers to the questions sought after by the ME and CFS community and which are vital for the public to be aware of. The story yet to be filmed continues in the UK and largely in the US where we will review the options that are available to patients and seek out what opportunities are on the horizon.

Putting your money behind the documentary will allow us to do the following:

  • Film the developments rapidly occurring across several states in the US including New York, California and Georgia.
  • Filming in the Wales and London will further explore the UK’s Government’s stance on ME/CFS.
  • Obtaining copyrights to archive footage required to support the narrative.
  • Post Production
  • Implement distribution strategy

Overall, the footage captured will expose the continuing controversies that exist in the
field and contribute significantly to an investigation which had already engaged over 200,000 people on first glimpse and could benefit millions once completed.

If we do not reach our goal of $165,000, any funds raised will still go towards filming as it is essential that we capture the remainder of the narrative. With footage in
hand we would then apply to alternative funding institutes to support the costs of post production and distribution.

Throughout the whole process, we would keep our supporters updated with our developments so they are aware of how their contribution has helped the documentary progress.

We are not looking to make a profit on this documentary but simply want to open eyes, ears, minds and hearts to how destructive ME and CFS is by stealing the freedom from those who contract it and threatening the reputations of those who are working to cure it. A better global understanding will hopefully lead to a bigger and better collective effort in tackling the disease. Any profits made will go towards supporting ME/CFS research.


In order to make your contribution count, we need to ensure that everyone gets behind the project so after picking a perk, spread the word! Share the link online by
choosing from the following Tweets and Facebook statuses to post on your social
media pages:


I Made a Difference to ME and you can too. Support the documentary WHAT ABOUT ME? at http://igg.me/at/whataboutme-doc/x/3692438

Help bring the debate on ME/CFS to the screen. Support documentary WHAT ABOUT ME? at http://igg.me/at/whataboutme-doc/x/3692438


I Made A Difference To ME @WHAT_ABOUT_M_E #ME_cfs #indiegogo http://igg.me/at/whataboutme-doc/x/3692438

Spread the word on ME @WHAT_ABOUT_M_E?#meawareness. Support
the documentary at indiegogo #fundraising http://igg.me/at/whataboutme-doc/x/3692438


In addition to tweeting and posting our slogans, you can send us your photo to be added to our quilt of photo supporters on our website! Just email us at office@digitaldocumentaries.co.uk.


Susan Douglas- Producer/Director

Susan opened her company Double D Productions in 2008, with the intent of producing feature films, documentaries and working with online platforms.

WHO KILLED NANCY? was the launch of the feature documentary, a story about the killing of Nancy Spungeon the girlfriend of Sid Vicious of the sex pistols. Also following through with the launch of an online platform, was THE GOONER REVIEW, a review of the Arsenal football club season, with no holds barred for the fans and by the celebrity fans. There has also been ST GEORGE'S DAY, where Susan was co -producer, a gangster film theatrically released worldwide. Double D also produced the "making of" for the DVD where Susan directed. Double D has now also entered into service production, for visiting US companies.

Lucinda Van Rie- Co Producer

Co-Producer, Lucinda Van Rie started out as a film location caterer in 1990 which
gradually led to the opportunity to Production Assist The Changeling starring the late Ian Drury and directed by MarcusThompson. She worked for many years at Focus Films in the development department and Associate Produced the UK/CAN co-production of The Book of Eve and assisted several international co-productions including The 51st State , Aka Formula 51 and Sandmother. She oversaw crucial financial stages for films Copying Beethoven and Heaven and Earth.
As Head of Production for blueLight production company she managed the
co-production of the award winning film The Visitor and Peter Mullans’ latest award winning film, NEDS.

Oliver Potterton- Editor

Oliver Potterton is winner of two Golden Trailer Awards in Los Angeles 2012.
With 22 years experience as an editor, his work mainly resides in advertising
for film along with cutting documentaries and feature films.

Dan Roberts-Editor

Previous projects include feature films (Simon Pegg comedy ‘A Fantastic Fear of Everything’; documentary‘Cameraman: The Life & Work of Jack Cardiff’ which screened at the CannesFilm Festival, and horror ‘The Task’), as well as TV drama (two episodes of multi-BAFTA & Emmy-winning ‘Cranford’). Dan was also Assembly Editor on up-coming Nick Frost vehicle ‘Cuban

Sophia Koulle- Researcher

Sophia is very excited to have joined Double D Productions at the re-launch of the WHAT ABOUT ME? documentary. Social injustice causes has been at the heart of her past work assisting broadcast campaigns for organisations such as the Global
Campaign for Education and Anti-Slavery International. She is very proud to be
part of a team that intends to create an impact on screen and make a difference
to the ME story for the better.

Find This Campaign On
raised in 1 month
1% funded
No time left
$165,000 USD goal
Flexible Funding This campaign has ended and will receive all funds raised.
Campaign Closed
This campaign ended on September 29, 2013
Select a Perk
  • $25USD
    The Social Media Perk

    A big thank you for your individual support will be posted across all our online and social media platforms Facebook, Twitter and on our brand new international WHAT ABOUT ME? website! *If you do have an account with Facebook and/or Twitter please provide us with your profile names so we can tag you in our posts!

    5 claimed
  • $45USD
    WHAT ABOUT ME? T-Shirt

    We have t-shirts designed for men and women to demonstrate their support for the film along with big thanks on the WHAT ABOUT ME? Website! *Shipping costs vary according to territory. Please add $5 if you are located within Europe and $7 if you are located outside Europe. **Please note that T-shirts will be distributed after completion of the Indiegogo Campaign.

    4 claimed
  • $50USD
    Capture the journey on DVD

    Be one of first to see the film with a DVD copy once completed along with big thanks for your support on the WHAT ABOUT ME? Website! *Shipping costs vary according to territory. Please add $4 if you are located within Europe and $6 if you are located outside Europe. **Please note that the DVDs will be distributed after completion of the film in Spring 2014.

    16 claimed
  • $115USD
    WHAT ABOUT ME? Triple Perk

    Take part in the campaign online, on screen and on a t-shirt with the social media package, DVD and branded t-shirt. *Shipping costs vary according to territory. Please add $9 if you are located within Europe and $13 if you are located outside Europe. **Please note that T-shirts will be delivered after the completion of the Indiegogo Campaign and DVDs will be distributed after completion of the film in Spring 2014.

    1 claimed
  • $200USD
    On screen ‘Thank you’ credit

    Get acknowledged for your support with a credit in the documentary. Your name will feature in the closing credits of the film.

    0 claimed
  • $300USD
    WHAT ABOUT ME? Ultimate Perk

    With this package you get everything from the Triple Perk PLUS the On screen 'Thank you' credit! *Shipping costs vary according to territory. Please add $9 if you are located within Europe and $13 if you are located outside Europe. **Please note that T-shirts will be delivered after the completion of the Indiegogo Campaign and DVDs will be distributed after completion of the film in Spring 2014.

    0 claimed
  • $400USD
    Share the journey

    We will send you a batch of 10 DVDs to share out amongst your friends, family and colleagues to build awareness in your own community along with a thank you across our social media pages! *Shipping costs vary according to territory. Please add $12 if you are located within Europe and $20 if you are located outside Europe. **Please note that the DVDs will be distributed after completion of the film in Spring 2014.

    0 claimed
  • $2,500USD
    Associate Producer Credit

    Get your name in lights with an Associate Producer credit in the closing titles of the film plus the Triple Perk Package. Only five available so act fast to avoid missing out!

    0 out of 5 claimed
  • $10,000USD
    Executive Producer Credit

    The ultimate contribution to the campaign for one very generous supporter for an exclusive Executive Producer credit in the documentary along with the Triple Perk Package!

    0 out of 1 claimed
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