The Hurting Strings, An Artist's Story of Pain

I want to create a documentary to change a bad life experience of Pelvic Chronic Pain (specifically known as Pudendal Neuralgia) into education for others.
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Soula Mantalvanos
Health
Melbourne
Australia
4 Team Members

Summary

In 2007 whilst working on an antiburst fit ball as an Artist and Creative Director at Origin of Image, I suddenly dropped to the concrete floor. My antiburst fitball burst. I found myself in a world of chronic pain.  

I've spent the last six and a half years continuously searching for relief from the pain sustained, and looking for practitioners who would understand that what I was experiencing was real and could be diagnosed. At the 4.5 year mark, I eventually discovered that my pain is in fact real, it's called Pudendal Neuralgia (PN).

What We Need & What You Get

I have become a huge advocate for PN by creating pudendalnerve.com.au which is used as an international resource. My mission now is to make sure people with Pudendal Neuralgia don’t have to wait as long as I did to find relief and a diagnosis.

I believe I can achieve this by contributing my experience to a quality documentary with handmade films.com.au that can be distributed throughout the world and used by practitioners and patients for PN education. I want the documentary accessible to everyone via a free web link.

To make this quality film, I need your support to raise funds for the production of the video, filming and editing. I want to show my research and coping strategies through art, western and alternative medicine, and most importantly show how I've managed to relieve some of my pain and how I found my way back to a quality life.

Diagnosis of PN is crucial, in fact if I had been diagnosed sooner, I believe I would not have a life long pain issue now.

Please help me change a bad life experience into something good... into Pelvic Pain education.

This film will be available on my websites
www.pudendalnerve.com.au
www.soula.com.au

Other ways you can help

Please make some serious social media noise and share this link even if you can't donate. Use the provided Indiegogo share tools and blab about my campaign.

More about Pelvic Pain

"... in May 2011, the magnitude of the health problem to be investigated was obvious. Pelvic pain disorders significantly disrupt quality of life and cause huge societal and financial burdens for a large percentage of our population. Pelvic pain in women is one of the last taboos of modern society. Its stigma permeates every aspect of her care from her parents' perception of their daughter's complaints, through the lack of integrated health services to the absence of pelvic pain as a worthwhile subject for clinical research."  From the Australian report, 'The 6 Billion Woman and the $600 million dollar girl' 2011.

About Soula

Soula is an extremely positive person and determined to make life as joyous as possible. She attributes most of her capacity to be able to do this because of the dedication of her husband, the home she has built, the community she lives in, her dog Zephyr and her multitude of creative pursuits.

Find This Campaign On
$4,400AUD
raised by 72 people in 1 month
88% funded
0 time left
$5,000 AUD goal
Flexible Funding This campaign has ended and will receive all funds raised.
Campaign Closed
This campaign ended on December 20, 2013
Select a Perk
  • $10AUD
    Sincere public thank you

    Sincere thanks, we appreciate your commitment to getting greater understanding around PN. We will thank you publicly via social media.

    5 claimed

  • $20AUD
    Limited edition print

    Sincere thanks and a limited edition print of Soula's Doug Moran Semi Finalist painting, Self portrait - Chronic Pain (210 x 210mm)

    13 out of 20 claimed

  • $50AUD
    Limited edition book

    Sincere thanks and a limited edition of Soula’s book, Art & Chronic Pain, A Self Portrait (32pp with dust jacket, 195 x 255mm)
. 400 printed. First 20 books signed with personal message by Soula

    15 out of 20 claimed

  • $100AUD
    Limited edition photograph

    Sincere thanks and a limited edtion photograph (by Marija Ivkovic), of Soula holding her marionette with drawings in the background, embossed, numbered, signed and dated by Soula (210mm x 297mm)

    4 out of 20 claimed

  • $500AUD
    Credit on video

    Sincere thanks and your name/company/organisation in the credits at the end of the video.

    0 claimed

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