My name is Igor and I was born in Ukraine. I am slowly dieing from Duchennes' Muscular Dystrophy and I have a story to tell. I was born just before the Chernopol Nuclear reactor accident in Ukraine. I spent the first few years of my life there and ran and played like every child. When I was 7 years old, something happened and my legs and feet began twisting and it started to effect my walk. Soon I could not walk any more and had to be carried to school, my family could not afford a wheel chair and the way my legs twisted, even riding in that would have made my trip to school painful.
The doctors did not know what was causing my sickness.
In 1993 a group of people came to our town from a missionary group called the Bible League. Among theme was a man who took interest in my condition and wanted to help. He brought me to the United States and that is where they told me what I had, Muscular Dystrophy. That man who wanted to help me is today my adopted father.
I traveled to the United States and was later adopted by my father who married my mother and we are now a family. There is more to tell, but that is not what is important here and now.
Last January I came down with extreme respitory illness that caused me to have to go on life support breathing equipment. Ever since that long 45 day hospital stay in Pittsburgh, the machines have been keeping me alive.
I live in the mountians north of Pittsburgh in an area where it is country, rural, and my electric goes out often with storms and downed tree limbs. This year alone the electic has gone out 4 times for as long a 2 days.
Since coming home on this equipment, our electric bills went up, and my Dad wanted to get a generator to keep the power on when the electric went out.
So we contacted the state health system and they said that there are grants to get generators for people like me and to modify my bath to help me with the new hole they cut into my neck so I can breath. But there is a catch, you can not add it to any home except in exsisting living space.
So my dad went to get an addition to build the space needed for me to have a new bathroom and the electric generator. That is when they told him that due to his being a disabled veteran, that the home loan would not allow him to add any new mortgage onto the house. This is due to the rules of the government mortgage and that the house has lost value with the economic down trun.
So in order to get my generator, and the new bathroom I need to be cared for at home, we would have to first pay off the mortgage, then build on the rooms needed for the additional equipment, and then the state will give us $10,000 to get the generator and the bathroom modifications along with the additional electric outlets for my new electric lungs.
I can not tell you how much this means to me and my family. If we do not get this done, I may have to go to a nursing home, which I do not want to do. I want to stay with my family.
To pay off the mortgage, build the addition for the handicap bath, and then build a generator concrete block room to put the generator in, we need $258,000 Once that is done, then and only then will the grant for $10,000 come from the state to provide a Trch safety shower, toilet, and the generator to prevent the lose of electric service which keeps me alive.
I can not do this unless you help. I need to get alot of attention to raise this money, and do it in a very short time. Otherwise, I will lose my home and my grant to get what I need to stay here at home and stay alive.
So you can help me in two big ways:
1. Post this page link on facebook, Myspace, twitter, and every social network you can for the next 48 days. Please tell your firends that they should give to help me get this life saving equipment so I can keep the electric on and keep my electric lungs working. PLEASE use the Indiegogo share tools!
2. please give all you can to help. I am afraid that i will not reach the goal I need and will be left trying to do this again to do what i have no choie to do if I want to stay alive in my home with my family. I have seen what happens to people like me in the nursing homes, i had a friend who had to go to the nursing home and because they ignored his immediate needs, he died after just 8 months. When your breathing tube pops out, and the family is near, I get attention fast. in the nursing home, where I would just be another patient, well, you get the picture.
I want to be here at home, and only you can help me do that.
My mom and dad spend each night helping me because now my disease has progressed to the point where I can not move. Please help me stay where those who love me can help me.
ALL CONTRIBUTIONS ARE TAX DEDUCTABLE THROUGH CYMG 501 (C) 3 for more information on legal IRS Charity see