This is a FINAL ATTEMPT at fundraising the last needed funds for the Handicap Accessible Vehicle for Sean Smith. Many fundraisers have occurred for the cause, and we now face the final effort - Sean has funding options from a few outside sources but needs just a little bit to get the ball finally rolling. This is it!
Help Sean Become Independent and Get to Medical Appointments
Born and raised in Lansing Michigan, Sean, 24, was born with the brittle bone disorder, Osteogenesis Imperfecta. OI, as it is commonly called, requires Sean to be in a wheelchair and puts many boundaries on his "normal" everyday life. Unable to walk, Sean must also be careful in large groups and performing common activities like getting dressed and transferring out of his chair, for fear of fractures. His first fracture occurred at the age of just two weeks, and since then, he has had over 70 fractures. Along with his brittle bones, Sean also suffers from scoliosis, restrictive lung disease, obstructive sleep apnea and asthma. The combined disabilities have resulted in three cardiac arrests so far due to complications arising from a common cold and from anesthesia.
In recent years Sean has been working towards his ultimate goal of being independent, and he also hopes to pursue a career as a filmmaker and songwriter. He already produced an album released on iTunes and worked as sound editor on a short film but most of all, he just wants to get to and from medical appointments without having to rely so heavily on other people. The funds would be used exclusively to pay for his medical expenses.
Due to his medical condition, Sean requires medical technology, housing adjustments, and many other things that are more costly than for the average person not also contending with his physical and medical necessities. High medical and insurance expenses have already put him in debt. Sean is currently using an old electronic transferring lift that does not work well and malfunctions. Sean's insurance company denied paying for a new one. As every error can cause more fractures and he requires it to get in and out of his wheelchair to his bed, to shower, to the restroom and in and out of a car to see doctors and have procedures done, it's is an absolute medical necessity that he get a new one. Along with past hospitalization bills, the growing number of medical expenses is staggering and he needs your help.
Some of the things the money donated will cover include,
· Adaptive Technology. ($3,000 Arjo Maxi-lite lift, Laguna shower chair
· Past Medical Expenses. ($4,000) including past ambulance services and doctors visits
· Independent Housing
His disability limits his mobility in and around his city, leaving him unable to travel for medical procedures, work experience, and a normal college life.
Other Ways You Can Help
Some people just cannot afford to contribute, but that doesn’t mean they can’t help. Please share this story! Twitter, Facebook, LinkedIn and other social media outlets to help build a strong campaign. A positive thought or prayer can go a long way in a journey like this, and everything helps.