I graduated from High School in 1984 in Philippi, West Virginia. I immediately moved to Mill Valley, California in order to get away from Huntington’s disease, which had claimed the life of my grandfather and my great grandmother and which had begun to affect my mother. In California, I began working towards a career in film. I worked on a few independent productions and at a film rental place in San Francisco.
I began making the “Huntington's Dance” in 1995 when I returned to West Virginia to assist my mother whose mental and physical health was rapidly deteriorating. During this time my constant companion became my video camera into which I began to confide my inner confusion and turmoil. I also filmed my mother who was in the latter stages of Huntington’s.
This film is about my mother, Huntington’s disease and how the knowledge that I was at risk for the disease has profoundly affected my life. You could say that Huntington’s has, in one way or another, been a constant companion over the course of my life.
Finishing this film has become a work of a lifetime, spanning as it has the last 18 years of my life. Sometimes it has felt like the film would never be completed. However, it has been important to many other people over the years and they have pushed me into the home stretch. I now have the end in sight and I can say that it is 95% completed.
Sometimes that remaining 5% feels like it’s another mountain to climb and I can hardly believe that it is really happening. I need your help to climb it!
What I Need
The funds being raised will go towards:
- color correction process
- sound mixing
- master copy and DVD’s
- marketing and distribution of the film to include entering and showing it in as many film festivals as possible in the next year
Since I was 18 years old I have been raising money for advancing research and education of Huntington’s disease. This film will put a face to Huntington’s and by doing so will generate conversation among the general public that will result in improved care and treatment of those with Huntington’s, and most of all facilitate finding a cure to eradicate the disease throughout the world. Now at the age of 47 I am in the early stages of Huntington's disease and the urgency to finish this film and begin to distribute it is with me daily.
Some Ways You Can Help
Some of you may know of this project through my annual Fund-raiser ‘Furb on the Green’ in Marin County or through the front page story in the Marin Independent Journal last year. I also regularly talk to medical students at the University of California, San Francisco and Stanford University. Some of you may know me and my family growing up in West Virginia, or through this past 28 years of living in the San Francisco Bay area. I also interact regularly with the Northern California Chapter of the Association for Huntington’s Disease. Some of you may know me through the interview for CBS Morning News or an article in the New York Times or having seen a trailer on my website huntingtonsdance.org.
The fact is that over the last few years this project has begun to generate a lot of buzz—and now my success of completing this personal documentary will only happen by my reaching this fund-raising goal. With your help, I know I will succeed! Please donate and help spread the word by directing people in your circle of friends and family to this website: http://igg.me/at/hungtingtons-dance!
For those of you who may not feel comfortable donating over the internet you may send a check to Chris Furbee 1259A Ocean Ave. Emeryville, California 94608
The Legal Stuff
- For those of you receiving tickets to a film festival screening, you need to arrange for your own travel and accomodations.
- You must be over 18 or accompanied by a parent or legal guardian (who will count as your plus one) to attend a film festival screening
- Chris Furbee, the film maker, is the person autographing the described "perks". There might be other autographs, such as the FOTG 2012 poster - the artist also signed these.