A Tool For the Chronically Ill That Puts Emotion First

I'm building a tool called the Moodifier for patients and caregivers to connect them by their similar illness and how they feel about it.
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Kate Milliken
Health
Paradise Valley, Arizona
United States
3 Team Members

My name is Kate Milliken. I was diagnosed with multiple sclerosis in 2006. One week into my diagnosis, someone introduced me to another woman who had lived with MS for thirty years.  I thought talking to her would help, but it didn't. She was bitter and I wanted to be hopeful.

I made a documentary about my first year with MS called katescounterpane.com; I made a choice to be emotionally honest through video, photos and text.  Kate's Counterpane launched in 2009 and I continue to get 2-3 phone calls a week from people newly diagnosed who are deeply grateful for its presence.  This has made me realize that people need a way to connect each other not only via sharing the daily experience of illness (the clinical) but by sharing the emotions behind the illness (the psychological).  This is how the Moodifier™ was born.

The Moodifier can be accessed on a desktop or smartphone and is designed for patients, caregivers and supporters.  It offers a way to tell your story via text, photos and videos and to categorize the emotional highs and lows.  By using it, other users can view someone's entire emotional journey in one look, making it easier to find someone who might be a positive connection.  

By contributing to my campaign, you are helping me build a version of this tool, to be found on mycounterpane.com.

This site will be a place where a newly diagnosed individual can find someone who offers context to all the scary "what ifs." It is a place where the longest sufferers of chronic illness may be given a renewed sense of purpose. It is a place where caregivers, whose lives have been forever changed by the illness of someone they love, have a platform to seek practical advice and share their own feelings.  It is a place is where patients and caregivers undergoing treatment can update friends and family on their progress. 

A counterpane is a patchwork quilt created from a variety of fabrics which, when sewn together, creates warmth and beauty as a whole.  My Counterpane is the experiential version of this quilt: A community that celebrates the virtual, remembers the real, and ultimately, counters pain with the knowledge of who we are, what we know, and how we feel.

The first counterpane at mycounterpane.com will be focused around MS.  As the site gains traction, other diseases will follow, broadening our focus and expanding our user base.  Your contribution is critically appreciated, as is the simple but tremendously helpful act of passing this link along to anyone you know who may be interested in what we're doing.  Also, if you'd like to receive the initial version of this site once built, please sign up for a notifcation at signup.mycounterpane.com- no spam, just an email introducing you to the tangible result of many generous people who have decided to help me launch my dream.

Gratefully,

Kate Milliken

 

Find This Campaign On
$60,475USD
raised by 235 people in 1 month
81% funded
No time left
$75,000 USD goal
Flexible Funding This campaign has ended and will receive all funds raised.
Campaign Closed
This campaign ended on April 29, 2013
Select a Perk
  • $10USD
    You Do a Micro Mitzvah

    Because you know me, appreciate my effort, or feel like shifting the energy of your day, you donate with no official return, thereby performing a mitz·vah (a worthy deed). Thank you!

    10 claimed
  • $25USD
    A 2GB Flash Drive+Thank You

    2 GB of greatness, to help start to build your dream. In a bright color to remind you that the possibilities are endless, accompanied by a thank you note. Wouldn't it be amazing if you kept my note, My Counterpane became the norm and you could say that you were there when....?

    11 claimed
  • $50USD
    A 4GB Flash Drive+Thank You

    Double your pleasure with double your funds. Accompanied by a thank you note. Chances are you haven't seen my handwriting and it's distinctive.

    16 claimed
  • $75USD
    Two Counterpane Koozies

    I married a Southerner who can't own enough koozies, and his enthusiasm has rubbed off on me. It turns out they come in handy for beers on the porch, festive picnics with family, Sunday afternoon football, and overall quality time away from electronics.

    7 claimed
  • $100USD
    A Credit in My Thank You Film

    Because I am a video producer, I will be producing a thank you film titled "My Counterpane Took a Village" and it will live on the site. Your participation will be forever recognized.

    38 claimed
  • $200USD
    Photo + Slate, Thank You Video

    You will send me a photo of yourself to include in my thank you video titled "My Counterpane Took a Village" and I will additionally add a slate with your name. Viewers need at least 2 seconds to read a title, which means you will get extra screen time for your altruism. If you're too busy to send a photo, we'll just give you a slate.

    24 claimed
  • $300USD
    A Gripzila Kickstand

    http://www.gripzila.com/. This device will be a integral accessory to Counterpane users when they add a Moodifier entry using video. It is simple and effective and the founder raised his funds to start his company on a crowdfunding site!

    1 claimed
  • $500USD
    Ambassador, Awesome, Patient

    This is an opportunity to talk directly with one of our Ambassadors of Awesome who each deal with a chronic issue- Meet Kevin Swan, ALS: alifestoryfoundation.org, Ashley Jansen, bipolar disorder: http://souldivers.net/story/, Chris Waddell, paralysis: one-revolution.com, Meri Hamilton, osteosarcoma: http://merisleg.blogspot.com, Kristen Powers, Huntington's disease: http://twitchdocumentary.com/ and Terry Lazin, ovarian cancer: http://yousend.it/XB9rpJ

    2 claimed
  • $500USD
    Ambassador, Awesome, Caregiver

    Meet these incredible ambassadors who are caregivers: Clau Bonnetti, Mother, Hurler's Syndrome: http://caterinamarcusfoundation.org, Bonnie Danowski, wife, MS: http://yousend.it/16k9ZU1 and Vicki Aime, Mother, Anorexia/Bulima: http://yousend.it/15KaAwR

    1 claimed
  • $1,000USD
    Founder's Circle

    Mega-mitzvah coming through! You will receive a flash drive, Koozies and a Gripzila, as well as your name in the "Founders Circle" list on Mycounterpane.com. Additionally, you will own the knowledge that you've been instrumental in bringing the site to life.

    4 claimed
  • $5,000USD
    Lunch Is On Me With Me

    I will fly to you and take you to lunch at your favorite local restaurant, wine included. I pledge to be on my conversational A game and can't wait to share the details of what’s planned for this site as well as hear your story. Domestic travel only.

    3 out of 5 claimed
  • $10,000USD
    Going On A Roller Coaster Ride

    I will fly you and a friend to the amusement park of your choice and meet you there, willing and terrified to ride any roller coaster you choose. This perk is the ultimate metaphor for coping with chronic illness, and starting a business. I will fight one of my greatest fears and persevere. Domestic travel only.

    0 out of 1 claimed
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