Tori is a beautiful seven year old girl who has a genetic disorder called neurofibromatosis or NF1. NF causes tumors to grow on the nerves of the body. There is NO CURE for NF.
Tori had three tumors that required treatment. She has an optic nerve glioma on each eye. She had a tumor on her cerebellar peduncle (brain) that required surgery. The tumors on her optic nerves have already caused significant vision loss in her left eye including a loss of color vision in that eye. Although this will most likely never improve, chemotherapy is required to prevent any more vision loss. Tori's tumors are considered cancerous.
Tori had brain surgery on February 27th. She is currently receiving vincristine and carboplatin, which are chemotherapy drugs each week. She will undergo chemotherapy each week for approximately 15 months.
Tori and her brother were both adopted from foster care and they have an older sister, and an older stepbrother at home as well. She is currently in first grade.
Despite everything that Tori has gone through in her life, she always lights up the room with her beautiful smile and loving personality. Tori wants to be a doctor, nurse, child life specialist, teacher, mommy and be on Dancing with the Stars.
No child at seven years old should stand in line at a store and tell the cashier that she had brain surgery and has a port and gets chemo and knows all about medical terms and procedures that adults couldn't even being to understand.
Due to her weakened immune system and consistent nerve pain in her hands and feet, Tori can not attend school this year. Her mom had to leave her job to stay home with Tori and a few months ago, Tori's dad was laid off.
We thank everyone for all they have done for this family over the months. Our first campaign has helped them paid rent and expenses, especially with Tori being in the hospital for a week. We are continuing our efforts to raise funds to help them with utilities, household and daily expenses, so that this family can focus on their little girl and getting her healthy.
You can read her blog at www.torigaga.com