Duncan and Sians Dream

Duncan and Sian Passmore became close friends after they helped us realize our dream to build our own eco-home in Brittany 4 years ago. Their son Torin, was diagnosed with a rare Mitochondrial Disease called Pearson Syndrome shortly after his birth in 2011, they were told he may not have long to live. After hearing this news from them, we were devastated. 

Little is known about Pearson Syndrome, its characteristic symptoms are bone marrow failure, pancreatic dysfunction and high levels of acidity. Mitochondria are, in simple terms, the batteries of the animal cell where energy is produced. Mitochondrial disease means that there is a genetic pre-disposition to having a large proportion of dysfunctional mitochondira within each cell and therefore the tissues. This means that it is far more of a struggle for the body to produce enough energy to enable the person to thrive. There is no known cure and it is progressive.

Now we want to help Duncan and Sian realize their dream of travelling the West Coast of America with Torin while he is in good health. Their deepest longing is to be able to  spend some quality time together exploring and being restored in Nature without the stress of work and financial committments. 

As a contributor you will be enabling this family to share an experience together that will last forever in their hearts and minds. This could be their only chance to do this.

What We Need 

Duncan and Sian need £6000 to be able to fund their trip to the West Coast of America for 6 weeks in October 2013. 

Anything raised over £6000 will go to The Lily Foundation which funds research into Mitochondrial Disease and other metabolic disorders.

http://www.thelilyfoundation.org.uk/

http://www.youtube.com/watch?v=my0b_0IYXc8

If we do not reach our target, we will keep the funds and continue with other fundraising activities until the goal is achieved. 

The Impact

Your contribution will provide a valuable sense of support and community to Duncan and Sian at this time while they are experiencing such huge challenges. Without the fundiing they will not be able to take what could be their only opportunity to spend this special time with Torin. In his short life Torin has already experienced over 50 hospital visits all over the country for regular tests, blood transfusions, illness and specialist consultations, his health is variable. Duncan and Sian have adapted their lives in order to prioritise the most important things in life and as such have chosen not to return to their jobs full time so they can spend as much time with their son as possible. 

Your contribution will also help raise awareness of The Lily Foundation and of Mitochondrial Disease in general which could in turn provide assistance to other families in a similar situation. 

Other Ways You Can Help

If our campaign strikes a chord with you remember that even a small contribution helps towards moving our goal foward.  

And if financial support just isnt possible please make some noise about us ! 

Use the Indiegogo share buttons to tell your friends and family who might be able to help us reach our target. 

Thank you ! 

xxAdi