MarbleRoad is a non-profit, 501(c)(3) public charity incorporated in Washington, DC in September 2010. The mission of MarbleRoad is to connect people who have complex illnesses with the resources they need to help them improve their lives. [EIN: 56-2678469]
What We Need & What You Get
MarbleRoad is entering it's second year, and has ZERO corporate, loan or venture capitalist support. We rely entirely on public support and grant funding! We need your help to fulfill our vision!
In the U.S., a rare disease is one that affects fewer than 200,000 people. This definition comes from the Orphan Drug Act of 1983 and is slightly different from the definition used in Europe. There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, as many as one in ten Americans are suffering from a rare disease... Besides dealing with their specific medical problems, people with rare diseases struggle to get a proper diagnosis, find information, and get treatment. The rarity of their conditions makes medical research more difficult.
Health centers maintain an open-door policy, providing treatment regardless of an individual’s income or insurance coverage. Health centers serve the homeless, residents of public housing, migrant farm workers and others with emergent and chronic health care needs, but limited resources to secure treatment through traditional channels. Health centers provide substantial benefits to their communities:
- They serve 20% of low-income, uninsured people.
- 70% of their patients live in poverty.
- They provide comprehensive care, including physical, mental and dental care.
They save the national health care system between $9.9 billion and $17.6 billion a year by helping patients avoid emergency rooms and making better use of preventive services.