Provides emotional, physical, or rehabilitative support to someone in need;
most often a time-consuming, unpaid, unanticipated role, filled out of urgent need.
The Caregiver Space was born out of my need for a safe supportive haven while I was a caregiver for both my husband Steve, who was diagnosed with lung cancer in 2005 and his ailing mother Sylvia, diagnosed with lymphoma at the age of 89. During the six years I cared for my husband and two and a half years for my mother-in-law, I felt a strong personal need to connect with other caregivers and to be part of a community where experiences and feelings could be shared and support could always be found.
After Steve and his mom passed away I founded The Caregiver Space as a free, inclusive site to provide support for all caregivers. Whether you are tending to elderly parents, a partner, children with special needs or those with other physical or mental challenges, caregivers' work is ongoing and too often unseen. The physical, emotional and financial burdens caregivers bear are significant. We can—we must—do better in caring for caregivers.
I built this free site for caregivers so direct support is available 24/7/365—whenever a caregiver goes online. The site provides a safe space to decompress and share experiences both privately (in a journaling section) and with other caregivers, through live chats and public forums. The site supplies valuable resources that will help you cope with the stress and exhaustion that comes with often ceaseless, chronic care to a loved one in need.
Caregivers coming to the site have access to:
-daily CareCards -weekly newsletters
-weekly blogs -live chat space
-private journaling -community discussion boards
-expert moderators -our online Caregiver Store
-caregiver interviews -a curated lifestyle database
Coming next month: webinars and a caregiver fitness program
Coming in the near future: a monthly podcast and interactive seminars
My deepest goal for The Caregiver Space is to ensure that the same quality of attention caregivers provide will be available to them whenever they need it.
Your support will guarantee this site remains free and accessible to caregivers. Please support this network so we can give back to the people in our lives who give so much.
Raising $35,000 will enable the site to continue to run at full capacity for three months. We have already obtained our non-profit status but are unable to secure the larger grants and sponsorships we need until our pending 501(c)(3) non-profit organization application is approved. Your support now will do more than just keep this space alive. It will help us develop our site so it's more user friendly and allow us to expand the tools and programs we can offer each unique caregiver.
I do not take a salary. My priority for this initiative is for it to be self-sustaining. I am fortunate to have a talented young, creative, energetic staff.
Your contributions will also support the work of our staff, including talented Media Director, Allie Axel, who has been here from the start. She plays a paramount role maintaining the site: from adding new daily content, to being a point person for caregivers. She oversees our entire social media presence—she wears more hats than I probably know about.
Jonah Okun is a valuable new member to my team. Serving as our Development Director, he is responsible for attracting sponsorships and outside support to ensure the ongoing success of The Caregiver Space.
Consider just some of the impact Caregivers have:
• There are more than 65 million caregivers in the United
• They provide 78 percent of long-term care even though
they are undervalued and under-supported
• 39% of adults in the U.S. are now family caregivers
• Most caregivers receive no compensation including no
money from the government
• Caregivers’ work saves the Federal Government $450
billion each year—nearly as much as total spending on
Medicaid in 2009 ($509 billion).
In the years ahead, unpaid family caregivers will likely continue to provide the largest source of long-term care services in the United States. Estimates show that between 40-70% of caregivers have clinically identified symptoms of depression. Approximately a quarter to a half meet the diagnostic criteria for major depression.
Because of the chronic stress and depression that comes with serving in this role, in many instances caregivers are more likely to die before the person they are caring for. Your support will help lower these numbers as we reach out to more caregivers.
The work we do at The Caregiver Space stems from our commitment to ensuring caregivers feel seen, heard and most of all supported. Their work is selfless, ceaseless and exhausting. Our highest priority is to offer caregivers hope, strength, inspiration and nurturance.
Please support our efforts by making a contribution, joining our network and telling a caregiver you know that there’s a place designed just for them. Thank you.
President and Founder