This is Baby Blake. He was born to my best Friends Tracey, Dean and big brother dakoda on 8/17/12. He was home with his family for a week and a half when he became very sick. On 8/29/12, His parents took him to Geneva general Hospital when he was later tranferred to Strong Memorial Pediatric ICU. It was there that Blake was diagnosed with Non-compaction Cardiomyopathy. This is a rare congenital heart defect that effects the muscle development of the heart. Due to its recent establishment as a diagnosis and rarity, research and treatment is very limited.
Baby Blake was put on a ventilator and a managed plan of medications.Doctors at Strong tried many attempts to get Blake's heart to improve,but it was determined on 9/6/12 his heart is to weak and damaged to function on it's own. He needs a Heart Transplant to survive.
After getting the conformation that a Heart Transplant is Blakes only option, Tracey and Dean were told that he would be transferred to Mount Sinai Hospital in New York City to await the transplant as soon as a bed was available for him. A few hours later, they were notified that baby Blake would be tranferred to NYC the very next morning at 10 am by airplane ambulance.
This has all happened in about one weeks time. Tracey and Dean have barely had time to process whats happend let alone make arrangments for thier affairs. Aside from Blake, Tracey has a 10 yr old son. She had only one evening to spend with him. She explained as much as he could understand. She had to tell him she had to go to NYC in the morning to be with baby Blake. It was the hardest decision a mother would have to make, to leave one son behind to help another. Dean is not able to be with Tracey and his first born son, due to having to work to keep his family financially afloat. Tracey is hours away from her friends and family with no idea where anything is. Dean will visit as often as possible as travel is expensive.
So blake has made it to NYC and has been there now for about a month. He is stable right now and waiting for his new heart.He had a minor surgery on his tummy and pulled through sos strong. He is currently working on gaining weight and getting his stregnth up for the big day. Mommy stays in NYC with Blake. Daddy and big bro Dakoda visit on weekends when able. Blake has been fighting hard. He is tired but remains determined.It has been hard on him and his family.
Please donate to baby Blake, as we have no assurance when a heart will be available or what medical or financial burdens he will face. Please donate to support a mother and father and big brother who wait in the balance. Please donate to help them stay positive,feel supported, and reunite with family and freinds during this difficult time!