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Charise
A Portrait of an African American with Albinsim
 Tampa, Florida
United States
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Tags:  bully  albino  albinism  black  african  pigment  genes  sunburn  skin  cancer  colitis  ulcerative  ostomy  ocular  vision  blind  color  race  ethnic  ethnicity  fight  argue  family  relationships  values  love  documentary  genetics  dvx100  independent  film  festival  tampa  florida  loyal  affection  siblings  brother  mother  father  dad  mom  beach  movie  children  home  video  charise  women  woman  son  child  african-american  beauty  beautiful  pretty  self-esteem  genetic-disorder 
Synopsis: Join us for an intimate look into the life of Charise Johnson, a vibrant young African-American woman with a 10-year-old son and a busy life. When you first see her you can tell right away she’s different. Charise has Albinism. And when you get to know her you will discover she really is different and there’s nothing wrong with that.

In 1974, when Charise was born, a childhood free of major health problems is not what life had in store for her. At the age of nine she was diagnosed with Ulcerative Colitis. By the time Charise became an adult, she'd had several surgeries, a temporary ostomy bag, and ultimately had her large intestines removed entirely; after which she developed Crohn's disease. Arthritis has left her in need of knee replacements and a lifetime of damage to her skin from the sun has lead to re-occurring skin cancers.

Charise, being blessed with a mature and supportive family had incredible support throughout her developmental years. They are what kept her grounded when the social pains far outweighed her physical ills. There was no shortage of bullies and teasers in Charise’s life. Even as an adult she can’t escape the verbal abuse of strangers with statements like “what are you?”.

In “Charise: A Portrait of an African American with Albinism”, Charise shares with us, her pains and her joys. She talks about her family life and what it is like having Albinism from medical, social and personal perspectives.
IndieGoGo URL:  http://www.indiegogo.com/Charise
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Charise: A Portrait of an African American with Albinism Trailer 1

In “Charise: A Portrait of an African American with Albinism”, Charise shares with us, her pains and her joys. She talks about her family life and what it is like having Albinism from medical, social and personal perspectives.


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Charise & Son, Tyre

LINKS
Charise: A Portrait of an African American with Albinism The official website for "Charise: A Portrait of an African American with Albinism"
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FUNDING
Goal
$800
How will these funds be used?
These finishing funds will pay for transcription and subtitle services in English.
VIP PERKS
$5 Red Thank you for making my dreams come true!
$10 Orange Thank you for making my dreams come true with sugar on top!
$25 Yellow Receive a website mention and writing Pen.
$50 Green Receive a special thanks in the closing credits of the film, a website mention and writing Pen.
$100 Blue Receive a DVD of the completed film,a special thanks in the closing credits of the film, website mention and Rosewood writing Pen.
$250 Indigo Receive a DVD of the completed film,a special thanks in the closing credits of the film, website mention and Rosewood writing set and writing journal.
$500 Violet Receive a special edition DVD of the completed film,a special thanks in the closing credits of the film, website mention and Rosewood writing set and writing journal.
$1,000 Rainbow Receive a special edition DVD of the completed film,a special thanks in the closing credits of the film, website mention, Rosewood writing set, writing journal, and an invitation to attend the festival premiere.
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QUESTIONS AND ANSWERS
What makes Charise different?
This project is unique in that it covers a topic that has not been covered before; African Americans with Albinism. This film serves as an educational tool about Albinism but also addresses the social issues that may be faced by those with Albinism and particularly African Americans with Albinism. While this film is a portrait of the life experience of one African American woman with Albinism, it serves to help us take more care in how we view and treat others. At the same time, it questions our perceptions about ethnicity, race and the true functions/purpose of genes.
What is the name of the legal entity behind this project, if any?
Ijaba Films
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